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Anonymization of Longitudinal Electronic Medical Records
2012
IEEE Transactions on Information Technology in Biomedicine
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Electronic medical record (EMR) systems have enabled healthcare providers to collect detailed patient information from the primary care domain. ...
We demonstrate that the proposed approach can generate anonymized data that permit effective biomedical analysis using several patient cohorts derived from the EMR system of the Vanderbilt University Medical ...
Gkoulalas-Divanis (IBM Research) for helpful discussions on the formulation of this problem. ...
doi:10.1109/titb.2012.2185850
pmid:22287248
pmcid:PMC3779068
fatcat:k5sfryem7zdtdg5lrkiwzbwezu
Harmonising data from different sources to conduct research using linked survey and routine datasets
2018
International Journal of Population Data Science
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population based anonymously linkable longitudinal cohort. ...
IntroductionHarmonization of different data sources from various electronic health records across systems enhances the potential scope and granularity of data available to health data research, providing ...
population based anonymously linkable longitudinal cohort. ...
doi:10.23889/ijpds.v3i4.750
fatcat:dwbbdgdfufapdggubrdulovwvu
The CAMH Neuroinformatics Platform: A Hospital-Focused Brain-CODE Implementation
2018
Frontiers in Neuroinformatics
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Investigations of mental illness have been enriched by the advent and maturation of neuroimaging technologies and the rapid pace and increased affordability of molecular sequencing techniques, however, ...
Aggregation of high-dimensional datasets across brain disorders can increase sample sizes and may help identify underlying causes of brain dysfunction, however, additional barriers exist for effective ...
Funding for the Neuroinformatics Platform provided by the Government of Ontario. ...
doi:10.3389/fninf.2018.00077
pmid:30459587
pmcid:PMC6232622
fatcat:ecbxaeuqtjhjlcqylhlkjb5qae
Privacy Preserving Data Mining for Healthcare Record: A Survey of Algorithms
2017
International Journal of Trend in Scientific Research and Development
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The emerging privacy concern has become a major obstacle in storing and sharing of medical data. ...
In this paper, we present a survey of the state algorithms that have been proposed for publishing medical data in a privacy preserving way. ...
An Electronic Health Record (EHR) digital version of a patient's medical history. ...
doi:10.31142/ijtsrd7191
fatcat:xcwrsotqcfe7balytme5o6wohe
Management of Medical Data Access Using Blockchain Technology
2020
Zenodo
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While there is still a considerable amount of debate around the superiority of electronic medical records over paper records, the research literature paints a more realistic picture of the benefits and ...
Key words: Blockchain technology, Medical patients' records, Medical data access, K-means algorithm, K-anonymity ...
segmentation of the medical data
Electronic Health Record (EHR) databases contain vast amounts of information about patients. ...
doi:10.5281/zenodo.4425050
fatcat:apvdhvr2qne5nnehwvj3nj6w3y
An Improved Collaborative Pruning Using Ant Colony Optimization and Pessimistic Technique of C5.0 Decision Tree Algorithm
2020
Zenodo
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While there is still a considerable amount of debate around the superiority of electronic medical records over paper records, the research literature paints a more realistic picture of the benefits and ...
Key words: Blockchain technology, Medical patients' records, Medical data access, K-means algorithm, K-anonymity ...
Figure 4 : 4 A general architecture of the longitudinal data anonymization process. ...
doi:10.5281/zenodo.4427209
fatcat:znvf3sh3zjdylbq2h5gtx2lgeq
The electronic health record as a primary source of clinical phenotype for genetic epidemiological studies
2008
Genomic Medicine
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The electronic health record (EHR) is a longitudinal electronic record of a patient's health information generated by one or more encounters in any care delivery setting. ...
The main advantages of the EHR include the following: (1) Information can be continuously updated. (2) Data from the EHR system can be used anonymously in statistical evaluation for purposes of quality ...
doi:10.1007/s11568-008-9021-1
pmid:18716916
pmcid:PMC2518657
fatcat:edocnohucndhxcl5735pkmnqqm
Databases for pediatric medicine research in Europe-assessment and critical appraisal
2008
Pharmacoepidemiology and Drug Safety
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For drug safety studies it is more appropriate to use electronic patient record databases because of the available clinical information and the potential to obtain additional information. ...
Ten databases are based on electronic patient records from primary care physicians and five databases are predominantly claims oriented. ...
Practice Research
Database (GPRD)
The GPRD is a computerized database of anonymized
longitudinal medical records from primary care. ...
doi:10.1002/pds.1661
pmid:18979461
fatcat:ao7hjwqjirdsnlv3c4rlg7llqa
Ethical Issues in Secondary Use of Personal Health Information
2018
IEEE Technology Policy and Ethics
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PHI describes the biological attributes of the human being, often containing longitudinal records of wellness, illness, test results, and treatments [3] . ...
Although PHI for secondary uses is generally anonymized, its widespread distribution on the Internet raises ethical concerns. ...
Technologies like the Electronic Health Record (EHR) provide a digital archive of patient PHI. ...
doi:10.1109/ntpe.2018.9778123
fatcat:m3bsbsusuvbw7dlmcsn3m7n5ti
Integration of Biobanks in National eHealth Ecosystems Facilitating Long-Term Longitudinal Clinical-Omics Studies and Citizens' Engagement in Research Through eHealthBioR
2021
Frontiers in Digital Health
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Electronic health record (EHR) registries have long existed in healthcare providers. ...
In some countries, even at the national level, these record the state of the health of citizens through time for the purposes of healthcare and data portability between different providers. ...
European Union's, Horizon 2020 research and Innovation program, under Grant Agreement No. 857122, and the eHealth4U project which is co-funded by the European Regional Development Fund and the Republic of ...
doi:10.3389/fdgth.2021.628646
pmid:34713101
pmcid:PMC8521893
fatcat:vozze2goxbc3hn36znf3hbbn4u
Bidirectional Data Collaborations in Distributed Research
2016
eGEMs
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of care, availability of longitudinal data resources through data linkage, and the processes to share data and link data resources while ensuring privacy and proprietary control of data. ...
Perspective: These activities will require enhanced levels of trust between entities involved in the delivery of healthcare (Trust 2.0) in addition to the trust health plans and health systems have with ...
Acknowledgements The authors wish to thank Marcus Wilson and Michael Pollack for reviews on earlier drafts of this commentary. ...
doi:10.13063/2327-9214.1205
pmid:27141518
pmcid:PMC4827790
fatcat:sc3vzzisnbc47py6ypeqlbrcfy
Protection of personal information in real-world data in Japan
2020
Annals of Clinical Epidemiology
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Realworld data (administrative claims data, health check-ups data, the Diagnosis Procedure Combination data, and electronic medical records) originally include these personal data. ...
The Diagnosis Procedure Combination data and electronic medical records are collected from hospitals and clinics, and patient identification numbers are replaced by dummy identifiers. ...
doi:10.37737/ace.2.1_1
fatcat:piaqu5wu75gnhbnfbmsfqnmhr4
Data systems and record linkage: considerations for pharmacoepidemiologic studies examining cancer risk
2016
Annals of Epidemiology
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This commentary focuses on challenges in the epidemiologic evaluation of cancer risk in the postapproval drug setting in the United States when using data systems and linkages. ...
No sources of funding were used to assist in the preparation of this study. ...
Marsha Reichman, Office of Surveillance and Epidemiology Center for Drug Evaluation and Research, FDA, for her thoughtful comments and suggestions. ...
doi:10.1016/j.annepidem.2016.08.015
pmid:27639347
pmcid:PMC5671775
fatcat:qj3fpkoc3zcwznffwujm5udumm
SHARE: system design and case studies for statistical health information release
2013
JAMIA Journal of the American Medical Informatics Association
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Figure 6 Average counts and query errors of longitudinal queries with respect to time length for the Emory electronic medical record (EeMR) dataset. ...
We performed a variety of experiments on two real datasets, the surveillance, epidemiology and end results (SEER) breast cancer dataset and the Emory electronic medical record (EeMR) dataset, to demonstrate ...
A data custodian for a medical institution typically has access to structured and unstructured components of electronic health records (EHR). ...
doi:10.1136/amiajnl-2012-001032
pmid:23059729
pmcid:PMC3555328
fatcat:ghrwohia6ve2za5cv3vx5quy7u
Electronic Health Records Should Support Clinical Research
2005
Journal of Medical Internet Research
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One aspect of electronic care records which has received little attention is the potential benefit to clinical research. ...
Electronic records could facilitate new interfaces between care and research environments, leading to great improvements in the scope and efficiency of research. ...
In addition, electronic records which "follow" the patient are likely to provide an efficient method of capturing outcome data in clinical trials and longitudinal studies. ...
doi:10.2196/jmir.7.1.e4
pmid:15829476
pmcid:PMC1550635
fatcat:plbrouwcubevfkmoio3b4zbz3a
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